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Von Hippel-Lindau disease (VHL

Old 10-12-2018, 12:32 PM
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Default Von Hippel-Lindau disease (VHL

Anyone have knowledge of this, Someone Bery special to me was diagnosed.

Last edited by WPBTH; 10-13-2018 at 03:06 PM.
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Old 10-12-2018, 12:40 PM
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It don't look too good :-(
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Old 10-12-2018, 12:47 PM
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A girl from our hometown was diagnosed with VHL.. She wrote a book on her story and they recently filmed a documentary. (side note: I haven't read it yet, but know that she did this via Facebook)

Amazon Amazon
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Old 10-12-2018, 12:54 PM
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Originally Posted by Tommysmicroskiff View Post
It don't look too good :-(
yeah
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Old 10-18-2018, 04:57 PM
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Anyone else?
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