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Now it's my turn

Old 06-28-2018, 06:20 PM
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49 years old. PSA 4.5 for the last 12 months. 3.2 before that. Gleason score 6. Biopsy results were 3 of the 12 being positive and 1 of those was 40%. The other 2 were 5%
doc is recommending IMRT. Not sure if I need a 2nd opinion. Obviously I would prefer the wait and monitor treatment plan but I'm not a Dr.
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Old 06-28-2018, 06:25 PM
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Very sorry to hear this. You will find generous support, advice and prayers here and you have mine.

Edit: I knew what this was about before I opened the thread.
F*&^K Cancer!!
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Old 06-28-2018, 06:30 PM
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Mine was riding 4 -5 and I went for a MRI that I paid for instead of the 12 core biopsy.
insurance would not pay unless I had the biopsy 1st and they did not find anything.
nothing was found that needed to be looked at(biopsied)

Most men die with it, but not many die from it
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Old 06-28-2018, 06:31 PM
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Ok, first thing you need to do is breath!.

Sucks for sure, and whatever you do...PLEASE get at least two other opinions. I've kept up fairly well in that field, survivor going on 11 years now in that arena and my numbers where far worse than yours! From what I'm hearing, many thoughts about delaying treatment. But again, PLEASE go see several other folks and READ, READ, READ!!!!! before making any decisions! Like Barnacled said, lots of great info right here on THT and support as well.

Prayer sent.
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Old 06-28-2018, 06:54 PM
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Should i get a 2nd opinion on the biopsy results or treatment recommendations?
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Old 06-28-2018, 06:58 PM
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The treatment recommendation. Tough to screw up a biopsy result, but...if your ins will pay to have both done again, or you can afford it out of pocket, biopsies are easy things to have done as well. Definitely get a second opinion on treatment.
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Old 06-28-2018, 08:23 PM
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My biopsies were not an accurate indication of the severity of spread of the cancer in my experience.
My original doctor provided several options for treatment but not all. He did not recommend any specific treatment.
Start researching all treatments.
In my case I'm glad that I did not delay.
There will be many more chiming in.
Wishing you the best. Hang in there.
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Old 06-28-2018, 08:45 PM
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Sorry to hear this MM.
Prayers sent, hang in there brother.
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Old 06-28-2018, 10:31 PM
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Originally Posted by MercuryMan200 View Post
49 years old. PSA 4.5 for the last 12 months. 3.2 before that. Gleason score 6. Biopsy results were 3 of the 12 being positive and 1 of those was 40%. The other 2 were 5%
doc is recommending IMRT. Not sure if I need a 2nd opinion. Obviously I would prefer the wait and monitor treatment plan but I'm not a Dr.
I don't understand all those numbers, but - get the medical treatment now to extend your life and beat this thing.

The alternative isn't worth considering.
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Old 06-28-2018, 11:01 PM
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Originally Posted by MercuryMan200 View Post
49 years old. PSA 4.5 for the last 12 months. 3.2 before that. Gleason score 6. Biopsy results were 3 of the 12 being positive and 1 of those was 40%. The other 2 were 5%
doc is recommending IMRT. Not sure if I need a 2nd opinion. Obviously I would prefer the wait and monitor treatment plan but I'm not a Dr.
Send the slides to another pathology lab such as Bostwick labs . Gleason 3+3 is not bad at all. You definitely could wait and watch.

Also look at cyberknife treatment.
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Old 06-28-2018, 11:30 PM
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I always recommend a 2nd opinion but in a case like this, I consider time is of the essence so I'd only seek that 2nd if it could be done within a week or two at the most. Anymore than that and I'd stick with your original Dr.

God Bless you MM and good luck!
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Old 06-29-2018, 03:06 AM
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As an oncologist, I would not recommend watching and waiting. You are 49 and waiting will only result in delaying the inevitable, higher risk disease or more intensive treatment. You have low risk disease so imrt is reasonable. Brachytherapy and surgery also likely an option but would have to k no own more about you to know for sure. Cyberknife, or SBRT, is the newest way but I would not do it if it were me. I would get an opinion from a urologist and a radiation oncologist and then decide.
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Old 06-29-2018, 03:14 AM
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Sorry to hear MM, would certainly look into a second opinion, definitely do not watch and wait.

Good luck and THT is always here for ya.
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Old 06-29-2018, 05:45 AM
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I was diagnosed at 39 (over 8 years ago now). If you live in Florida or can get to it you need to see Dr.Vipal Patel in Celebration Florida (Google him). If you decide to go this route he is the best in the world at robotic prostatectomy.All the Dr's I saw had the same opinion and It was the best option for me. I've experienced no side effects from the surgery usually associated with the standard prostatectomy. When I went to him he had already done thousands of this procedure. All of the other Dr's I saw (UF Shands and locals) had only performed less than 100 and most in the teens and he trained all of them. Just another option to look in to. You must be proactive though. Good luck.

Edit: Just checked. Dr. Patel has performed over 9500 robotic prostatectomy procedures.
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Old 06-29-2018, 05:52 AM
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For you guys under 50, how did you get diagnosed? Routine exams or were there symptoms.

49 Years old here.
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Old 06-29-2018, 05:57 AM
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I had gone to a urologist (not Dr. Patel) for years due to chronic kidney stones. When I was 39 he just did a routine prostate exam since I was nearing 40. and lucky for me he found it.

One thing Dr. Patel did say is that if I had brothers they would most likely have it or get it. A couple years later my older brother was diagnosed.
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Old 06-29-2018, 06:06 AM
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Originally Posted by Qb1rdman View Post
For you guys under 50, how did you get diagnosed? Routine exams or were there symptoms.

49 Years old here.
My doc just added a PSA to my annual physical. No symptoms. As you read above, prostate cancer isn't limited to just the "old guys". At 49, just get your doctor to check the PSA block when you do your next physical.

MM, sorry to hear man but listen to the above advice. Find a specialist and at least get a second opinion. Not sure where you are located but it may be worth traveling to get to a good one. PC is highly curable. Good luck man!
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Old 06-29-2018, 10:00 AM
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Originally Posted by Qb1rdman View Post
For you guys under 50, how did you get diagnosed? Routine exams or were there symptoms.

49 Years old here.
My employer pays for us to have an annual physical which includes a PSA blood draw. I have so signs or symptoms. Actually my prostate is on the smaller side.
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Old 06-29-2018, 10:19 AM
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Originally Posted by spraynet 1 View Post
The treatment recommendation. Tough to screw up a biopsy result, but...if your ins will pay to have both done again, or you can afford it out of pocket, biopsies are easy things to have done as well. Definitely get a second opinion on treatment.
I politely disagree. It depends on the skill and experience of the pathologist. Reading prostate cancer biopsy samples is some art, some science. In my case, the biopsy results were read by a pathologist who does nothing but prostate biopsy readings and gets samples from all across the whole state. A local pathologist who doesn't specialize in prostate biopsies may get it wrong. Find out who did your pathology work.

A Gleason score of 6 (3+3) means you have time to get more opinions. My biopsy results were Gleason 6 (3+3). After surgery 4 months later, the pathologist who examined the removed organ assigned the same score. Gleason 6 (3+3) with a PSA of 4.5 is almost certainly curable. Gleason 7 (3+4) a bit less certain. Gleason 7 (4+3) less certain yet. The higher the Gleason number gets, the greater the risk of metastasis.

It's worth knowing that a biopsy doesn't necessarily give an accurate picture of the state of the cancer, because it only looks at a very small part of the organ. My BIL was scored a Gleason 6 (3+3) in his biopsy, but after surgery the organ scored Gleason 7 (4+3).

If your prostate is on the smaller side, then a PSA of 4.5 is a bit more concerning, as when prostate size goes up, so does a normal (non-cancerous) PSA result. My PSA (4.01) was normal for a prostate the size of mine (very large), but the cancer was there. Your PSA test results should have included a %free PSA value as well. That is important in diagnosis. It was that number in my PSA that led me to surgical intervention.
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Old 09-20-2018, 07:57 PM
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Just an update. After speaking with an oncologist, I have decided to have my prostate removed. I am meeting with Dr. Patel in celebration Fl. next week.
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