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Glaucoma - questions???

Old 03-30-2017, 06:37 AM
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Default Glaucoma - questions???

Pretty lousy day yesterday as I was diagnosed with low tension glaucoma.

I'm 47 years old and visit optometrist yearly for last 20 years or so. My father had glaucoma and my younger brother was diagnosed several years ago. My optometrist is aware of my family history and he has seemingly been on top of it with testing and reviews for the last five years or so. I have been adamant with him of my concerns and my pressures have always been in normal range.

I went two weeks ago to my optometrist and he referred me to an ophthalmologist because he noticed some thinning of nerve fibers in my left eye. Met with the ophthalmologist yesterday and have glaucoma in both eyes, somewhat advanced in left eye with vision loss and disc hemorrhage. I'm on drops for the next few weeks until follow up to reduce pressure and see where to go from there.

Advice for others with genetic concerns - see an ophthalmologist! I'm more than a little pissed that my optometrist did not refer me earlier.

What treatment options are out there?

Is it realistic to expect with surgery/medication that further vision loss will stop or be minimal?


Thanks in advance.
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Old 03-30-2017, 06:48 AM
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As I understand it, it is a highly manageable disease. Drops generally work well, but if not, there are a few different options for surgeries.

Main thing is you HAVE to do what the opthalmologist says and stay on top of it. And find a new optometrist.

Mine was suspicious and sent me straight to one of the top glaucoma specialists in the country. He monitored me for a couple years and said all is good.

The bad news is once it's gone it's gone, but the good news is you caught it and generally they can greatly slow down or stop the progression. There are alot of options.
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Old 03-30-2017, 07:14 AM
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I've been on drops for high pressure for about 20 years. It keeps things in check. I just had one of my exams last night. Every 3 months is the standard protocol. Some visits are just pressure checks while others perform rotating yearly checks such as optic nerve pictures or field vision (which I hate) tests.


Funny thing is that no one in our family has any history of glaucoma, but both my sister and I have high pressure.
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Old 03-30-2017, 08:07 AM
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Originally Posted by Shore Native View Post
Pretty lousy day yesterday as I was diagnosed with low tension glaucoma.

I'm 47 years old and visit optometrist yearly for last 20 years or so. My father had glaucoma and my younger brother was diagnosed several years ago. My optometrist is aware of my family history and he has seemingly been on top of it with testing and reviews for the last five years or so. I have been adamant with him of my concerns and my pressures have always been in normal range.

I went two weeks ago to my optometrist and he referred me to an ophthalmologist because he noticed some thinning of nerve fibers in my left eye. Met with the ophthalmologist yesterday and have glaucoma in both eyes, somewhat advanced in left eye with vision loss and disc hemorrhage. I'm on drops for the next few weeks until follow up to reduce pressure and see where to go from there.

Advice for others with genetic concerns - see an ophthalmologist! I'm more than a little pissed that my optometrist did not refer me earlier.

What treatment options are out there?

Is it realistic to expect with surgery/medication that further vision loss will stop or be minimal?


Thanks in advance.


Wilmer Eye Institute at Johns Hopkins! Friend of Mine on Tidalfish went there..I'm sure He would be glad to talk to You of His experience if You need Surgery..
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Old 03-30-2017, 08:11 AM
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Originally Posted by ReelNauti View Post
I've been on drops for high pressure for about 20 years. It keeps things in check. I just had one of my exams last night. Every 3 months is the standard protocol. Some visits are just pressure checks while others perform rotating yearly checks such as optic nerve pictures or field vision (which I hate) tests.


Funny thing is that no one in our family has any history of glaucoma, but both my sister and I have high pressure.
Man I despise that test! Went in last week to have it done since it's been about 5 years. Had me take my contacts out and I couldn't​ even freaking see the dot in the middle. Made me take it anyway. Right eye was good, left showed low light sensitivity in the middle. Then he realized my contacts were out. Put em in, took it again, perfect.

I hate that test...You feel like you are losing your vision as you are taking it. Especially when it goes 5 seconds without a flash, so you panic and think you are missing it.
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Old 03-30-2017, 09:53 AM
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Taking the drops in one eye the last couple of years and seems to be manageable. Be aware if you have to deals with cataracts, need someone who knows what they are doing. The pressure issue is often a problem with cataracts.
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Old 03-30-2017, 09:56 AM
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Are you going to get a Prescription for weed?
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Old 03-30-2017, 10:12 AM
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I've spent the last 2 years dealing with a form of glaucoma that was not treatable with drops alone. In a 6 month period pressure went from 10 ( good) to 44 (bad). Was sent to a specialist in Boston who couldn't figure out the cause or control it. Underwent trabulectomy that hurt like hell and didnt help. Ended up with shunt be placed in my eye. That was a nightmare. when that healed up I had a cataract, so back under the knife. Can control it with drops for the rest of my life(hopefully). They warned me that the shunt may fail and I would need to have another one put in. Other than the occasionally sharp stabbing pain, it's fine... I was also 47 when it started. Good luck
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Old 03-30-2017, 10:28 AM
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I've been on Xalatan (latanoprost) drops for a number of years due to low tension glaucoma. I get checked twice a year and annual vision field testing. So far the drops have kept everything stable.

Good luck with yours.

Everybody needs to see an ophthalmologist very few years.
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Old 03-30-2017, 10:58 AM
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Sorry about your situation. Low tension glaucoma can be difficult to treat. The current approach is to lower the pressure as much as possible without serious side effects. I try and start therapy in one eye first, then recheck in 2-3 weeks to make sure the med is working and there is a meaningful pressure differential between the two eyes. There is a laser procedure(SLT) which may be helpful, it generally lasts a few years before a repeat is necessary. Glaucoma surgery is challenging- I have found that results vary widely even among glaucoma surgeons at the top institutions. Good luck.
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Old 03-30-2017, 11:24 AM
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Seeing as how you are in Easton, MD I second the recommendation as to Wilmer at Johns Hopkins.

Full disclosure: wife is an RN at Hopkins
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Old 03-30-2017, 11:29 AM
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I don't know anything about Glaucoma but I do know Easton. My family is from there. All the Carroll's anyway. My Uncle lives on Brooklets Ave. Old codger. Pretty well known in that town.
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Old 03-30-2017, 03:58 PM
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You are likely to be prescribed eyedrops. I was prescribed Travatan Z. I developed heart arrhythmia with a week after starting eyedrop use. My family doctor sent me to a cardiologist. The cardiologist wanted to implant a pacemaker, even though the rhythm problem wasn't affecting my ability to exercise. I said "No", told him about the eyedrops and found that, like my family doctor, the cardiologist knew absolutely nothing about eyedrop side effects. Saw my ophthalmologist, Travatan Z wasn't having a beneficial effect on my eyeball pressure, prescribed something else. 1 week after starting the new prescription, heart rhythm back to normal, also eyeball pressure dropped to normal. Lesson here- watch for side effects of the eyedrops and understand your doctors may be blissfully ignorant of the side effects, especially the rare ones like I experienced.

Oh, also be advised that eyedrops for glaucoma are very expensive. Active ingredient prices run around $1 million/gram in dosage form. Seriously.
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Old 03-30-2017, 04:13 PM
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Originally Posted by yarcraft91 View Post

Oh, also be advised that eyedrops for glaucoma are very expensive. Active ingredient prices run around $1 million/gram in dosage form. Seriously.
I always get samples from the dr every time I go. Most times I can get 2. Since I go every 3 months this really limits how often I actually have to buy it.
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Old 03-30-2017, 04:25 PM
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Drops, SLT laser, and otentially, ultimately knife surgery. No going back, but it's progress can be slowed/stopped.

Good luck!!
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Old 03-31-2017, 08:27 AM
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Originally Posted by grantkc View Post
I've spent the last 2 years dealing with a form of glaucoma that was not treatable with drops alone. In a 6 month period pressure went from 10 ( good) to 44 (bad). Was sent to a specialist in Boston who couldn't figure out the cause or control it. Underwent trabulectomy that hurt like hell and didnt help. Ended up with shunt be placed in my eye. That was a nightmare. when that healed up I had a cataract, so back under the knife. Can control it with drops for the rest of my life(hopefully). They warned me that the shunt may fail and I would need to have another one put in. Other than the occasionally sharp stabbing pain, it's fine... I was also 47 when it started. Good luck
That sounds like a pretty tough time. Good luck to you.
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Old 03-31-2017, 08:32 AM
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Originally Posted by Jus Teasin View Post
Are you going to get a Prescription for weed?
Maybe, lol.

From what I've read weed only reduces pressure for a few hours at a time so you have to smoke many times a day. I don't want to be THAT impaired
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Old 03-31-2017, 08:33 AM
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Originally Posted by cphilip View Post
I don't know anything about Glaucoma but I do know Easton. My family is from there. All the Carroll's anyway. My Uncle lives on Brooklets Ave. Old codger. Pretty well known in that town.
He didn't own the market on St. Michaels Rd?
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