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Lyme Disease -anyone else in the club?

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Lyme Disease -anyone else in the club?

Old 07-08-2013, 05:41 AM
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Default Lyme Disease -anyone else in the club?

Mine started a year ago June, blood work confirmed it. Antibiotics for 60 days seemed to work well. I had flu like symptoms along with tingling and slight numbness in arms and leg. At times the joints in my hands hurt so bad I couldn't pick up a quart of milk. Last fall, winter and spring I felt great. 3 weeks ago started felling shitty again. Back on antibiotics for 90 days now, also had an MRI of my head on Friday just to rule out anything else. Doc says lets see what drugs do after 30, 60 and 90 days. If that doesn't work he's talking IV antibiotics (2-3 X's a week) for 3-6 months The real pisser is with me and about 50% of the cases out there I had no idea when / where I was bitten. No bite mark, not red circle..........no clue. Just felt like I had the flu really bad and my entire body ached. Be careful out there and protect yourself and well as you can. I wouldn't wish this crap on anyone
Old 07-08-2013, 05:49 AM
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Had it 10 years ago. I was having high fevers every night, headaches, and body aches. I never knew where I got bit. I was a competitive runner at the time and was doing a lot of running in the woods on trails though.
Old 07-08-2013, 05:56 AM
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10 years, Wow. Are you still taking any type of meds? I normally have a fever in the AM
Old 07-08-2013, 05:57 AM
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I live very close to Lyme, CT, the epicenter of this terrible illness. The key is to have a very good doctor that knows this disease!

I know many people who've had it, some recover quickly, others take awhile, but feeling confident in your doctor is very important.
Old 07-08-2013, 06:00 AM
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My wife, multiple times. It does suck. Also antibiotics made her have to stay out of the sun during 2 vacations...
Old 07-08-2013, 06:03 AM
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Originally Posted by John_Madison CT View Post
I live very close to Lyme, CT, the epicenter of this terrible illness. The key is to have a very good doctor that knows this disease!

I know many people who've had it, some recover quickly, others take awhile, but feeling confident in your doctor is very important.
I actually just started going to a specialist in it. Will see how that goes. I'm finding out their is a lot of people who have it. Talked to one guy the other day in the waiting room, mid 50's and had worked as a chemist for Dupont for 24 years. He had to quit because it really effected his memory.


Originally Posted by bottom knocker View Post
My wife, multiple times. It does suck. Also antibiotics made her have to stay out of the sun during 2 vacations...
Were going to Bermuda in September, nothing is going to keep me from the beach
Old 07-08-2013, 06:46 AM
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Originally Posted by FASTFJR View Post
10 years, Wow. Are you still taking any type of meds? I normally have a fever in the AM
I havent taken anything for it since I stopped the antibiotics. I was on doxycycline for several months to combat it. I had to stay out of the sun and it tore up my stomach.

My fevers were high every night before I went to bed. I started having the effects in August, when it is hottest, and was sleeping under a comforter. I believe my fevers were going as high as 103 if I remember correctly (it was 10 years ago when I was 30 or 31).

I battle tendonitis a lot now and no longer run like I used to. The Dr. said it could be from the effects of having had lyme or just the result of years of hard running.
Old 07-08-2013, 06:50 AM
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Time to switch to biking. My wife and I ran a lot until we were 40-42. Both of us battled with tendonitis and finally said screw it and took up biking. No more pains from running . Were 50 and 51 now
Old 07-08-2013, 07:23 AM
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My youngest daughter had it twice. Fortunately we caught it in the first stage both times. In the first stage antibiotics work effectively. She was 4 and 6 at the time. We noticed the flu symptoms and a hard lump where she was bit. Quite surprised the first time, and the second time my wife recognized it right away.
Old 07-08-2013, 07:50 AM
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Originally Posted by FASTFJR View Post
10 years, Wow. Are you still taking any type of meds? I normally have a fever in the AM
Now I haven't had Lime disease that I know of...maybe that's what my problem is? ;? I definitely have a lot of the symptoms you guys are talking about. But I can tell you haven't acclimated to the pain yet with your response/ question above.....hang in there, you'll get accustomed to the pain screwing up your life. Sorry to be the bearer of the grey skies. Good luck and do as the doctors say.

Last edited by Garett; 07-08-2013 at 09:37 AM.
Old 07-08-2013, 07:55 AM
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Cold weather and/or climate tames it down. Thats why summer is the worst for symptoms. Good luck its a horrible desease
Old 07-08-2013, 08:05 AM
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Read a book called Lab257.
Old 07-08-2013, 08:09 AM
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Originally Posted by cdx View Post
My youngest daughter had it twice. Fortunately we caught it in the first stage both times. In the first stage antibiotics work effectively. She was 4 and 6 at the time. We noticed the flu symptoms and a hard lump where she was bit. Quite surprised the first time, and the second time my wife recognized it right away.
WOW....that REALLY sucks; for her and you the parents! Prays just sent.
Old 07-08-2013, 08:33 AM
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Originally Posted by Garett View Post
WOW....that REALLY sucks; for her and you the parents! Prays just sent.
Thanks, but this was years ago. My youngest is 16 now. Antibiotics in the first stage according to our family doctor is 100%. She has no long term effects from Lyme.
Old 07-08-2013, 09:06 AM
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Originally Posted by cdx View Post
TShe has no long term effects from Lyme.
Old 07-08-2013, 09:11 AM
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Ex sister in law is one of those animal rescue types....she must have been bitten years ago and now can't hold down a job in her profession, nursing.

It has gotten into her system and affects her behavior and thinking and thought process...

Even with all of that, the animals come first in her life ahead of any one else..
Old 07-08-2013, 09:35 AM
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Originally Posted by cdx View Post
She has no long term effects from Lyme.
Good, thank God! Playing outside and having fun shouldn't come with such a high price tag.
Old 07-08-2013, 10:14 AM
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Had it over 20 years ago. Headaches, extreme fatigue!!! bones tingling. Could not concentrate enough to read at times, which is mainly what I was doing at work at the time. At least 1 1/2 years of strong oral antibiotics. Only remaining symptom is that it wiped out both of my thumb joints. Something I have to live with.

Most important thing is finding a Lyme literate doctor. Many Drs still falsely believe today that even for stage 3 Lyme three weeks of doxycycline will cure it. At the time I had several Drs tell me no such thing as lyme in the state I lived at the time (MD), even though a study I found said that the area had the highest percentage of ticks carrying Lyme of any state outside new England. Some Drs also told me that Lyme would never attack the joints as small as thumb joints although many studies have clearly shown that this was a leading symptom of Lyme.

I had a large, increasing in size, odd shaped, non circular rash under one of my underarms. Went away after maybe 2-3 weeks. Wasn't until well over a year later that I realized this was actually the rash from the tick bite.

Last edited by fishin_blues; 07-08-2013 at 12:21 PM. Reason: clarification
Old 07-08-2013, 10:34 AM
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had it/ have it. the key is to get antibiotics right away. i waited a while and i still have fatigue, painful joints and swollen joints a year later after months of antibiotics. i am working now with a family whos 16 year old daughter got it and its so severe that she is wheel chair bound. its no joke if left alone. it can be non event or a life changing event depending on what part of your body it attacks and how long you wait to treat.

to the OP im not too far from you and found a couple very good infectious disease specialist. if you cant get it under control with what youre doing now thats the way to go.

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