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Were you to be diagnosed with Altzheimers...

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Were you to be diagnosed with Altzheimers...

Old 07-21-2012, 08:46 PM
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Default Were you to be diagnosed with Altzheimers...

while you were still cognizant, would you take yourself out preventatively, to keep your family from dealing with it?

Is it wrong of you did?





Honestly, I think I'd go out on my own terms.
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Old 07-21-2012, 09:01 PM
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My mom was diagnosed with early onset about 18 months ago. It has come on very rapidly as happens when the person is young (she's 62). We knew a few years ago something was wrong but the dr's thought it was depression at first(about 4 years ago). We currently have somebody coming 24 hours 3-4 days a week to help out. She is no longer there even remotely but still recognizes everybody and occasionally says a sentence or two that makes sense. In six months she is going to need 24/7 and I think she probably just spent her last birthday at home.

I agree with not making my family suffer if I were to be diagnosed, take a solo boat trip to Bermuda and say good by before I leave...... however dealing with it first hand these past two years, I think very few would be able to grasp the diagnosis by the time it is given.
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Old 07-21-2012, 09:06 PM
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I've known a few people who got the diagnosis. One was very aware of the outcome and what it entailed. He lived and dies with it a few years later. Another, like your mother, was already someone else when the diagnosis was "official".
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Old 07-22-2012, 05:16 AM
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Originally Posted by bjm9818 View Post
My mom was diagnosed with early onset about 18 months ago. It has come on very rapidly as happens when the person is young (she's 62). We knew a few years ago something was wrong but the dr's thought it was depression at first(about 4 years ago). We currently have somebody coming 24 hours 3-4 days a week to help out. She is no longer there even remotely but still recognizes everybody and occasionally says a sentence or two that makes sense. In six months she is going to need 24/7 and I think she probably just spent her last birthday at home.

I agree with not making my family suffer if I were to be diagnosed, take a solo boat trip to Bermuda and say good by before I leave...... however dealing with it first hand these past two years, I think very few would be able to grasp the diagnosis by the time it is given.
I'm sorry. That's so young. Our story is very similar, but very different. My Mom was diagnosed with EOA 2 yrs ago, she's 72 now. She knows everyone, lives fairly independently (with my Dad), and is in good health. Her main issue is with short term memory. Some days she's great, some not so, but honestly some people hardly notice and I often wonder if she even has this dreaded disease at all. She's known she's had this death sentence for two years, thinks about it every day, and talks about hoping she dies soon, etc. I need to keep her from shutting down. If I could get her to get up and about, be active physically and mentally, I think she'd do even better. My Dad doesn't have it in him to be caring and with me being the only child (thanks again M & D!) I'm in for the duration.

I went to a seminar one time and an Alz expert said something that kicked-in for me...once a patient gets to a certain point they are usually very at peace inside. More at peace than they ever were or you could ever be. It's those on the outside watching and dealing with their loved one that are in pain emotionally. It's OK to struggle dealing with it all but don't be in pain for them. If you love the person you find some solace in that they are at peace and just live for each moment because that moment won't be remembered by the time the next one comes along.

Sorry! ...back to the op's question...yes, I would. I am 50 years old and feel like I forget more than I should - we saw a similar pattern in my Mom around the same age - and there have been a few others in my family with Alz so I have myself convinced I have it (Which is a sucky way to live I'll tell ya). I've told my wife how I feel about "ending it" but her response always has been that by the time I get to that point it won't be my decision any longer, it'll be hers and my kid's and they're leaving it up to God.
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Old 07-22-2012, 05:40 AM
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I would, been threw it with my dad know exactly what to do!
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Old 07-22-2012, 05:50 AM
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So, you pull the trigger and the next day CNN anounces modern science found a cure??

Where there is life there is always hope!
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Old 07-22-2012, 05:58 AM
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My story and answer would be similar to kone's.

When my mother started to "go down hill", she had a 180 personality change. She was always extremely sweet personality and liked by all. The change in personality was quick and caught everyone off guard. Then I had to take her keys because she'd get lost going home. Most of the time she was fine and would just laugh about getting confused and didn't remember the nasty person that came out on occasion.

I built an addition to my house with a full kitchen, bedroom, bath, craft room and living room. When she wasn't in the hospital or a nursing home for heart problems, she stayed with me for 5 years. It became a 24/7 responsibility that was difficult at times. Still, I'm glad I was in a position to do it.

BTW, medications made a huge difference in her personality and I believe she spent the last years of her life very happy. As far as making a "preemptive" decision to end it, she would have had to do it years before. I think she was only vaguely aware of her condition once it got past the "forgetful" stage.
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Old 07-22-2012, 06:05 AM
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Originally Posted by beachnut53 View Post
So, you pull the trigger and the next day CNN anounces modern science found a cure??

Where there is life there is always hope!
The "In My Dreams" part of your signature says it all.......
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Old 07-22-2012, 06:09 AM
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Yes. I want to determine when I go if I can. Whether it be from dementia, cancer or other I want to be able to take myself out when it is time and I am done suffering. Greatest fear is paralysis or head injury so am making specific living will: no cpr, no intubation, no iv fluids, no antibiotics, no nutrition through feeding tube, i want nothing. Just pain medicine for pain or perceived pain and let me die
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Old 07-22-2012, 06:30 AM
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Happy Sunday.... Cheerful topic ...... :-)

I could only "take myself out" if I were close to death and really suffering ....
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Old 07-22-2012, 06:30 AM
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My mom is 72 and she has it. She just lost her drivers permit. My dads mother had it he doesn't. My mom's father had it so it ain't loooking to hot for me but I hope science makes enough advances to help treat it by the time I get it. I don't even like to think about it much less write about it
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Old 07-22-2012, 06:37 AM
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Just had a relative and a friend (upper 70's & 80's respectively) spend
the last few days of their lives in a morphine induced stupor.
Personally, I'd like to check out on my own terms before I get fitted for
diapers.
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Old 07-22-2012, 06:44 AM
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I have never been much of a quiter, plus I am too stubborn. I would probably try and fight it. Hard to say what you would do if it hasn't happened to you.
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Old 07-22-2012, 12:41 PM
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My mom now 81 started with symptoms a couple of years ago but nothing to worry much about, she lived quite well at home alone, my sister would see her on Sat/Sun and I Mon/Tues. so she had lots of coverage. She did puzzles walked to the market, went out with friends etc.

One day just after her 81st birthday she got Shingles and the Alz. kicked in hard and fast, within a couple of weeks she was off the charts, didn't remember where she lived who her closest family members were etc. (We moved her in with me and my family)

At times she knew enough to know she didn't live with us but still not enough to know where she did live, I took her back to her home once and she looked around and said "Who the hell lives in this dump". It broke my heart that the home we grew up in was so far out of her mind she didn't recognize her favorite chair or her shade tree in the yard.

Mom at times will make a break for it, walking out of the house saying she's going to end it all by walking in front of a truck. Every time she gets to the corner she stops and look both ways before crossing! I laugh every time!

Love Mom for all she's done in life and at times I wish she'd die peacefully in her sleep, she is tortured every day not fitting in anywhere.

I'd like to think I'd end it all for myself if I got that way but the truth is you just never know until it happens.
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Old 07-22-2012, 04:27 PM
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I went over the club to workout Friday and saw an elderly guy I've known for years and been on golf trips with. He looked great and, as he was leaving, mentioned he had been diagnised with Altimers (his word). I was shocked and so saddened. He seems fine and knew me by name.
I hugged him as he left.
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Old 07-22-2012, 04:42 PM
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Originally Posted by Uncas View Post
The "In My Dreams" part of your signature says it all.......
Maybe, but there are breakthroughs being done every day in many life threatening diseases. I am the recipient of one of those advances.

Yea, its a long shot, maybe very long at this point, but it is very possible.

Beats the hell out of no shot (IHMO).

The very best of luck to you.
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Old 07-22-2012, 04:52 PM
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There are quite a few in the bilge that if they wanted to check out early and lacked the nuts I'd be willing to help.

I'd even confirm an early stage onset diagnoses to help a brother out cause there are quite a few that are clearly at risk.....



















































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Old 07-22-2012, 05:42 PM
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Hey gout you should have taken yourself out a long time ago!
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Old 07-22-2012, 06:41 PM
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I have always been a fighter and dont know if I could just take myself out...

I have also been to more suicides than I care to know (by weapon, hanging or other ways) and it is almost always someone NOT on deaths doorstep. I often wonder what could have made someone do something so tragic.

The worst one was about 6 months ago when I drove up to a convienence store and a lady came up to me and said she thought someone just killed themselves in their car in the parking lot.. As I approached the car (driver door was open) the body was still twitching around and moving and his hand still clutched the .357. It took a while to get over that one. He apparently was having financial trouble..
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Old 07-22-2012, 06:48 PM
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My Mom had it and was mostly gone in the head before she died. I'm worried at 63 that I may get it because I'm already forgetting lots of stuff. My doctor told me I was okay, but I can't remember his name and I've been trying to find my keys now for....I'm not sure, about five days, or maybe it's six. My wife told me not to worry, either (at least she looks like my wife, or maybe she's my girlfriend).
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