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Cord blood storage

Old 03-10-2009, 08:59 AM
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Default Cord blood storage

In light of the recent stem cell thread, has anyone committed to storage of cord blood? My wife and I have decided to do it with our new baby (in 4 weeks). Doctors are now using it for many diseases, when just a few years ago it was only in research stages. $ 2000.00 + $ 125/year storage is a small price to pay for the benefits that can be had. It can also potentially help other immediate family members.
Old 03-10-2009, 11:06 AM
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Excellent idea! What happens if the cord blood is lost or destroyed? Are you given a refund? What does your contract say about it?
Old 03-10-2009, 11:44 AM
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They confirm within 48 hours whether it is viable or not. Apparently it is very rare for that to be the case, in fact, there is no risk if it is not viable.
Old 03-10-2009, 11:58 AM
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My wife and I are expecting our first baby in August. We have already decided to store the cord blood.
Old 03-10-2009, 12:41 PM
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Originally Posted by NJFISH View Post
They confirm within 48 hours whether it is viable or not. Apparently it is very rare for that to be the case, in fact, there is no risk if it is not viable.
Sorry, I wasn't clear. I meant what happens if you get a letter 5 years later that says there was a problem with the freezer, your stored blood thawed and deteriorated, is lost. Are you compensated for the loss and the money you invested in storing the blood up to that point?
Old 03-10-2009, 01:06 PM
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Interesting. Never heard of such a thing and my boy is only 6 years old.
Old 03-10-2009, 01:09 PM
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We did it for both of our boys. Small price to pay for a chance you will never get back. Who knows what science will be able to do with those stem cells in 10 or 20 years.
Old 03-10-2009, 01:58 PM
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My wife and I did it with our son. Absolute piece of cake with them picking it up etc. Thankfully we haven't had to use it, but we came close this year.
Old 03-10-2009, 04:36 PM
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Originally Posted by Eyeball View Post
Sorry, I wasn't clear. I meant what happens if you get a letter 5 years later that says there was a problem with the freezer, your stored blood thawed and deteriorated, is lost. Are you compensated for the loss and the money you invested in storing the blood up to that point?
Not sure, so I have my wife looking in to that. Hopefully they have an IcyTek and not just an Igloo!
Old 03-12-2009, 07:53 PM
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Did it with all three of my kids. As far as I am concerned it is relatively cheap insurance. It's about $1500 or so, as I recall, and the way I figured it, I would piss that money away on crap for my boat anyway if I didn't spend it on this, so, for us, it was an easy call.
Old 03-13-2009, 03:47 AM
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There is a recent article in Pediatrics ( a medical journal) that sums up the situation pretty well. Have a look. v123 p.1011. March 2009 issue.
Old 03-16-2009, 05:10 PM
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hi everyone,

sorry i am late to this thread. i have read so many posts here and in the other forums. there are so many knowledgeable boaters here that i often have nothing to add that is helpful. chord blood storage is the best money you will hopefully never have to recover. my wife and i have twins and we stored their chord blood with viacord. there are others out there, but that is the company we chose. in 2002, i was diagnosed with cml - chronic myelogenous leukemia. no sob story here, just filling in the facts. i needed a bone marrow transplant and was fortunate that my only brother was a perfect match. transplants generally fare better when the donor and host are closely related and the same sex. i remember the month or so it took waiting to see if my brother was a match and that was more stressful at times than knowing i was sick. imho, you are giving your child an incredible gift - and i pray that you never have to use it - and that is a chance.

on that note, for all of you that donate blood often ( i can't any more) or are signed up as organ donors, i call you heroes. i don't mean that in the hallmark sort of way, but in the truest sense of the word. you are helping others that you don't know when they truly need it. i remember getting a few blood transfusions and someone i have never met and will never know had a part in restoring my health. it is truly humbling.

bravo to you and others. you are good parents even befor your children are officially here.

charlie
Old 03-16-2009, 07:39 PM
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We did it with my son, 2 years old now, thankfully not have to use it. Pretty good insurance policy if you ask me. We paid the $2K, just paid the $125 yearly fee. Totally worth it.
Old 03-17-2009, 04:26 PM
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Chose not to do it. Typically it does not benefit that child but can help a sibling or even yourself if you should ever need it. My wife and I wanted to donate it but were suprized to find that the hospital would not allow for that.
Old 03-17-2009, 07:17 PM
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I'm thinking it is like gambling on the future. There may be a future cure for a future ailment in that tissue. Can't hurt to store it, except for that ungodly $2k upfront charge.
Old 03-18-2009, 03:50 AM
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We did it three years ago with our daughter and will be doing it again the middle of May with our 2nd daughter.
Old 03-18-2009, 09:30 AM
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This is an absolute no-brainer...that you literally have just 1 chance to make the call.

Yes, upfront cost is heavy, but you can shop around. I would start here:
http://parentsguidecordblood.org/con...mmary.shtml#us

There are also public registries where you can have the cord blood stored for public use (note: impossible for you to get your familial line at a later date if needed...). Here is a list:
http://parentsguidecordblood.org/con...anks_new.shtml

As a entrepenuer in Biotech, specifically in blood research, I can virtually assure you that the innovations that can come from these rich cells are literally right around the corner (few years...not decades away). Your baby may not benefit in the short term, but Grandma Lou or Uncle Bill just might appreciate your wise foresight.

AND the best part of this, is that your single donation is not a One Shot and Done deal. When the blood is harvested from the cord and shipped to the bank, it is processed upon receipt and aliquotted into multiple, cell rich cryovials (many cases they end up with 8 or more!). So if you do have a family member in need that could benefit, it makes the decision a bit easier when considering distribution.

Regarding what happens if at somepoint the facility encounters Equipment Failure...great question. All cord banks, public and private, must have a disaster recovery plan in place. Beyond back-up power supply, there must also be redundancy in the storage units (empty cryotanks available for inventory transfer if failure). These tanks operate on C02, so there's little "mechanical" refrigeration required, and very low likelyhood for failure. Beyond that, there's likely a statement in the storage contract that exempts the Facility from any liability due to acts of god (list is long) though gross negligence or willful misconduct (angry employee) would hold them liable.

This is a one shot deal. With Child 1 and 2, I was too late by the time I wanted to do it...Child 3 (aka. "the medical Franchise" for our family) we did harvest & store. We utilized New England Cord Blood Bank, and I have referred literally hundreds of friends/family to them.

Congratulations on your upcoming baby, and if you have any additional questions, either PM me or post them here.
Old 03-18-2009, 12:14 PM
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Bldstud - lots of good info in that post, thanks!
Old 07-18-2011, 08:06 PM
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Anyone else have information or opinions on this?
Old 07-19-2011, 04:29 AM
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We did it with our son and he is 5 now. I think if you can afford it then do it. We use this one: http://www.cordblood.com/
Make sure you have the kit ready before she goes into labor. Don't assume the doctor or hospital has this under control, ask and make sure it's all ready to go and remind them so it doesn't get screwed up. There are specific instructions on how to handle this and I would just ask her doctor if they have done this. You only have one chance to get it right!

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